What All Parents Need to Know Before Planning Their Next Vacation or Relocation
By Sharon Filip
We all look forward to vacationing in the sun and having fun activities for our children. Southern California, Arizona, New Mexico and Nevada are all prime vacation spots. Unfortunately, there is something lurking in the soil and air that has been kept a "local secret" from tourists and residents alike.
Your health and safety and that of your children are always in the forefront of your mind when making a decision as to where to go for your next vacation. Is there anyone out there who wouldn't want to keep their children healthy? I don't think so! As a mother, myself, I know firsthand how concerned I was whenever my young children got ill and ran a fever.
So what am I talking about? Believe it or not the southwest region of our beautiful United States has a naturally occurring biohazard that causes an incurable disease commonly known as Valley Fever. The name doesn't sound so bad but I can assure you the disease itself is horrendous.
Before I go any further I want to assure you that I understand why some people may be skeptical, but this is the truth and based upon many years of medical research as well as my own personal experience. It is also corroborated by the experience of thousands of others that I have heard from. The following information is here to empower you with facts so that you can make the best decision about where to travel and/or move to, putting the interests of your family first.
In Nevada they have a slogan "What happens in Vegas stays in Vegas," but when it comes to Valley Fever this is not the souvenir you want to take home.
Here are just a few facts that you need to know right away: Valley Fever is caused by a fungal parasite that lives and thrives in the desert soil. When it reproduces it sends spores in the air that people and animals inhale. It is an equal opportunity biohazard.
The species is called Coccidioides sp. and once inhaled causes the disease coccidioidomycosis, usually referred to as Valley Fever or "cocci" for short. Coccidioidomycosis is not an easy word to pronounce so its alternate names are almost always used in conversation.
Once it is inhaled into the lung it can stay an infection there and/or disseminate to any and all other organs in the body. Inside the body, the fungal spores turn into round spherules that are parasitic. They don't have mouths like the character from Pac-Man, but they do have an appetite. They consume parts of your body wherever they are with chemical reactions and leave dead and damaged cells in their wake. In a very short period of time spherules replicate. Each spherule has between 200-1000 baby spherules known as endospores and the replication repeats over and over again inside your body. It can completely overwhelm even the healthiest immune system and causes distress in the body. Whether you are immunocompromised or not it can easily wreak havoc.
All it takes is the inhalation of one spore to cause a lethal infection. Believe it or not, fifteen trillion (15,000,000,000) spores fit into one cubic inch. Obviously, they are not visible to the naked eye. These spores are in the air 365 days a year and 65% of all Valley Fever cases are contracted in the state of Arizona, with the largest majority in Phoenix and Tucson. These spores have been known to be carried by the wind and infect people and their pets up to 500 miles away.
Bakersfield, California is considered hyper endemic to this disease. Its location is also the origin of the term "San Joaquin Valley Fever." Sharks Tooth mountain is a well known risk area for Valley Fever.
Now that you get the picture of how easy it can be to contract this biohazard, you should also know that it is the only fungal parasite regulated by two anti-terrorism laws. Coccidioides sp. is considered the most virulent fungus known to man and no one warns tourists about it. Can you guess why?
Everyone is at equal risk for inhaling this biohazard but some people are at higher risk of dissemination throughout the body.
They are as follows:
- Pregnant women
- Young children
- The elderly
- Asian, Native American, and Hispanic groups
- African Americans are 20-50 times more likely to have a disseminated case
- Filipinos are 200 times more likely to have a disseminated case
Please note: Even though there are high risk groups for dissemination, previously-healthy Caucasians (such as myself prior to my own VF infection) actually have more disseminated cases and deaths than any other group overall. It doesn't mean anything to be outside of the high risk groups if your case has disseminated.
There is an epidemic of this disease among dogs as well. As with people, any dog is at risk of even the worst effects, but some are at a higher risk for dissemination than other dogs.
The higher-risk breeds are:
- Boxer
- Pointer
- Australian Shepherd
- Beagle
- Scottish Terrier
- Doberman Pinscher
- Cocker Spaniel
- Greyhound
Whether you have a purebred or a mixed-breed dog does not matter, as they can suffer extremely serious and even fatal cases of Valley Fever. One last note I would like to make is that cats also suffer from Valley Fever, but their cases are usually undiagnosed and underreported.
The main thing to know is that the morbidity of this disease is worse than the mortality of this disease. People and children can suffer the consequences for the rest of their lives.
Below is a story from an adult man who suffered Valley Fever at age eight himself, but his father's case of Valley Fever has affected him all his life:
"...watching my father slowly die from cocci, over the years of my youth, was tremendously traumatic.
"In some ways I still blame myself for his infection because it was me, as an 8 year old, who wanted a horse. Because of my desire and care of them, my father caught Valley Fever and died an early death.
"He was so sick throughout those years that he could no longer do those things with his son that fathers often did. Instead of being able to coach his son in local sports, he had spent hours in the hospital emergency room getting his treatments. Instead of taking the family on vacations across the country, he had to be picked up at work because driving was no longer a skill he could do. These are just a couple of small ways that the cocci affected him.
"During these times, I would do my homework in the waiting room and eat my dinner in the hospital cafeteria. It was necessary because my father would spend hours there, strapped to a table and tilted on his head while he got his spinal injections. It became my second home, the place where I would spend my after school time, and the place that I have ever since tried to avoid.
"Eventually, I would graduate from high school. Many years later, I would be told that my father said that he wanted to live just long enough to see me graduate from college. He was able to do this and lived another 4 years as the disease continued to eat into his brain. He died a few months after my college graduation.
"However, my father was never able to see me get married. He was never able to see his grandchild, or any success I made in my life. He just couldn't hold on any longer. He was denied many enjoyable and important events.
"That's a little bit of the story of cocci's affect on my father's, and my life. There's more to it, including the sacrifices made by his wife, my mother, and the rallying contributions of his siblings..."
Garth G., California
As you can see this disease affects the entire family. If mom or dad become incapacitated they can not work or even take care of their children much less pay the bills. At my website, www.valleyfeversurvivor.com we have received thousands of stories from people around the world. We have published some of them in our book, Valley Fever Epidemic.
Sometimes one spouse does not understand about the pain and fatigue Valley Fever causes. Children don't understand why mom or dad sleep so much and don't do the things they used to do with them. When it happens that a child contracts Valley Fever the pain to the parent is sometimes unbearable. You know how you would feel if you were watching your child lying in bed with severe head pain and having trouble breathing and not being able to do much about it. The costs are overwhelming physically and monetarily.
Being in your third trimester of pregnancy is supposed to be an exciting time in your life, but with Valley Fever that is not the case. Below is a story and review that we received from a lady who bought our book Valley Fever Epidemic after she had her baby while being infected with VF:
"I was in my 3rd trimester of pregnancy when I moved from Massachusetts to Arizona in October 1999. Little did I know that I was at risk for contracting Valley Fever. After living in Arizona for only 1 month, I was faced with the horrible symptoms described so clearly in this book. My new OB/GYN in Arizona was aware of the symptoms of Valley Fever and immediately had me tested and treated. Thankfully, my baby was born healthy. Unfortunately, I have been suffering with Valley Fever ever since! I WISH THIS BOOK WAS AVAILABLE 9 YEARS AGO AND MY DOCTOR IN MASSACHUSETTS WAS KNOWLEDGEABLE ABOUT VALLEY FEVER......I NEVER WOULD HAVE MOVED TO ARIZONA!!!! This book is a MUST for ALL doctors AND pregnant women, especially those who live and/or visit an epidemic area!!!! ALL Pregnant Women should read this INCREDIBLE book."
Ria Nordstrom, Kansas
When children , adults or animals contract Valley Fever, they exhibit many of the same symptoms as if they have the flu or pneumonia. There is a complete listing of all the symptoms on my website www.valleyfeversurvivor.com. Once Valley Fever is contracted you have it for life since there is presently no cure. It can go dormant and reactivate many times throughout one's life. The antifungal drugs taken for Valley Fever have many side effects that can make it very difficult if you need to use them long term. In some cases it may actually be necessary to be on antifungals for a lifetime. This can mean school or work is missed, lots of doctor or hospital visits, and lots of crying from all family members.
When lifetime antifungals are recommended for a young girl she may be told that she can never have children. Can you imagine telling your daughter that, just because she vacationed in Arizona or another endemic zone and contracted Valley Fever there, that she can not have children when she grows up?
In men and boys it can infect the testicles causing removal of the organ. Too many people need to have parts of their lung removed because of Valley Fever and that can make life very difficult for any family. Sometimes Valley Fever causes problems that require other surgeries to be needed.
If you or your children have always been active, enjoyed outdoor sports, tennis, hiking, etc, that could all be taken away if Valley Fever is contracted. We have heard from many people including competitive tennis players and long distance runners who can no longer participate in their sports the way they used to.
With all the above said, not everyone has a disseminated case and not everyone is made extremely sick if they contract Valley Fever. I, however, have heard from thousands of people with most of them having disseminated cases as well as their children. Unfortunately, children in a hospital inpatient database study for 2002 had an 8.5% death rate in children hospitalized with Valley Fever and a 6% death rate in adults hospitalized with Valley Fever. There is also a study which showed a 26.8% death rate in seniors who had pneumonia from Valley Fever and not dissemination. Fungal pneumonia is the most common symptom of this disease.
Only 2% of all cases are estimated to be accurately diagnosed, leaving 98 percent of cases undiagnosed and not treated accurately. In fact, a study in Arizona has shown that 29% of all hospital cases thought to be influenza actually were Valley Fever cases.
I often wonder how many actual influenza or pneumonia cases reported to the CDC are not really those illnesses at all but rather undiagnosed Valley Fever cases.
The most common sites of dissemination are the skin, joints, bones and meninges. When Valley Fever goes to the lining of the brain it can be lethal.
Some of the health issues that Valley Fever causes are myalgias, osteomyelitis, arthritis, rheumatism, COPD, and degenerative bone disease. Even depression can occur due to not getting better or back to being able to do the things one did prior to contracting Valley Fever. Having a chronic illness for the rest of one's life is not exactly uplifting.
Fibromyalgia and Chronic Fatigue Syndrome are conditions that the medical community does not consider to have known causes. However, many of our questionnaire respondents were diagnosed with these conditions shortly after their Valley Fever and as a result of their Valley Fever symptoms.
I have not yet written about the consequences of what it can mean to the family if they relocate to an endemic area where Valley Fever lives. Below is one story we received from a lady who did just that and was not aware of the existence of this disease.
"The most difficult part of the Valley Fever for me has been my inability to work, concentrate or care for my family. We also experienced a severe loss of income due to VF...Had no control over what was happening to me, therefore lived for months with a sense of panic that affected me and my entire family.
"Wish I had known about VF before making the decision to move to Arizona. Now it is too late. We have sold everything and we would lose way too much by trying to relocate again. I am hoping that no one else in my family will contract this terrible illness. It is unfortunate that people in government in Arizona and the builders/developers are more concerned with having money pour into their hands than with honesty and the health issues that are likely to affect most of the people moving to Arizona. I know none of my friends or family wants to come to visit, unfortunately. As I said, for us it is too late. We moved our business to Arizona and it would be very risky to try to move again."
Maria M., Arizona
If you would like to empower yourself with facts and information about this disease, please consider reading Valley Fever Epidemic. The knowledge you gain can save your family from unnecessary suffering.
My son, David, was there day and night when I went through the hardest times of my Valley Fever and together we co-authored Valley Fever Epidemic. We wanted to make sure everyone would be aware of this disease. Knowledge is power and only you can decide what is safest and best for your family once you are aware of all the facts.
Together David and I have been volunteering for the past seven years to help people with this disease and inform people about Valley Fever through our web site www.valleyfeversurvivor.com. One of our goals is to raise awareness and funds for research so that there will finally be a vaccine and a cure for Valley Fever.
On Tuesday, September 29th we will be holding a one day promotion of our book on Amazon.com. Please go to http://special.valleyfeverepidemic.com (no www's) and read all about it. There are many free bonus gifts for purchasing Valley Fever Epidemic on that day. A portion of the proceeds of all book sales on the 29th will go to Valley Fever research. It is a win/win for everyone. You can get the knowledge you need plus many free gifts and we can donate to Valley Fever research. With your help, one day Valley Fever can become a thing of the past.
I want to take the time to wish everyone here the best of health and happiness for you and your children.
About the Author
After her own Valley Fever infection, Sharon Filip started www.valleyfeversurvivor.com in 2002 to publicize up-to-date information, provide regional support groups, message boards, and campaigns for the vaccine and cure research. Valley Fever Survivor has become the #1 Valley Fever patient support organization in the world. Sharon is a dedicated advocate for awareness of the disease, patient support, and funding for the vaccine and cure projects. As a professional hypnotherapist, she helps those who suffer from depression because of their Valley Fever. She has been a motivational speaker, lecturer, and educator for decades and applies these skills in her fight against Valley Fever. If you would like to contact her, she can be reached by email at: [email protected]